About Our Organization
The Federation of Disability Organizations in Malawi (FEDOMA) was founded in 1999, as an umbrella Organizations of Persons with Disabilities OPDs in Malawi to provide a unified voice for all OPDs.
FEDOMA has a specific mandate as the voice of persons with disabilities of all kinds throughout Malawi and in acting on their behalf, ensuring that persons with disabilities have access to services and support that the able bodied community takes for granted.
FEDOMA is registered under the Trustees Incorporation Act and the Malawi Council for the Handicapped (MACOHA) and works in liaison with the Ministry Gender, Children, Disability and Social Welfare.
Currently, there are 12 Organizations of Persons with Disabilities (OPDs) affiliated to FEDOMA as follows:
- Malawi Union of the Blind (MUB).
- Disabled Women in Development (DIWODE).
- Malawi National Association of the Deaf (MANAD).
- Spinal Injuries Association of Malawi (SIAM)
- Parents of Disabled Children Association in Malawi (PODCAM).
- Association of persons with Albinism of Malawi (APAM).
- Association of Persons with Physical Disability in Malawi (APPDM).
- Disabled Widows Orphans Organization in Malawi (DWOOM)
- National Epilepsy Association(NEA)
- Disability rights Organization of Movement (DROM)
- Visual and Hearing Impaired Association of Malawi(VIHEMA)
- Mental Health Users and Cares Association (MEHUCA)
The organization is staffed and managed by an inclusive mix of persons with disabilities and persons without disabilities. This mix is reflected through the staff, the Board and the Trustees. The organization is led, on behalf of the Trustees and Board by the Executive Director. An elected volunteer Board made up of representatives of the eight development partner organizations manages FEDOMA. Elected voluntary officers within the Board – the Chairperson, the Secretary and Treasurer – work with the Secretariat Staff to ensure proper compliance with Board of governance. In addition to the Executive Board there is a legally constituted Board of Trustees that ensures that the organization is in full compliance with the legal requirements of Malawi and company law as it relates to nation al NGO’s.
SECRETARIAT-MEMBERS OF STAFF
- Simon Wahimwai Munde Acting Executive Director
- Christopher Mtalimanja Project Manager
- Ethel Kachala Project Manager
- Chisomo Malemba Finance Manager
- Saidi Bakali Accountant
- Malonje Phiri Project Coordinator
- Mtendere Malemia Project Coordinator
- Mevis M’meta District Project Coordinating Assistant-Mulanje District
- Albert Mwase District Project Coordinating Assistant-Mangochi District
- Andrew Njawala Sign Language Interpreter
- Vitumbiko Mzumara Head Driver
- Doris Msuku Office Assistant
- Francis Kanjuchi Driver
- Sinos Timothy Driver
- Wyson Bonongwe Guard
- Andrew Misanjo Gardener
- Mr. George Matipwiri
- Mr. Jailosi Wachimwa
- M.s Fanny Singini
- Mrs. Simon Thom
- Mr. Gaston Manda
|Board of Trustee||Executive Council|
|Ms. Odillia Phiri (Chairperson)||Mr. Mapopa Shaba ( Chairperson)|
|Professor Jonathan Makuwila||M.s Scader Luwis (Vice Chairperson)|
|Mrs. Grace Gondwe (Secretary)|
|Mrs. Bertha Malaya (Vice Secretary)|
|Mrs. Muchaneta Nachanje (Treasure)|
FEDOMA strives for an inclusive barrier free society where every individual is able to maximize their fullest potential
FEDOMA is an umbrella of Organizations of Persons with Disabilities which works to unify, coordinate efforts and strengthen the advocacy work its affiliates for the well-being of Persons with Disabilities in Malawi
- to promote and advocate for the rights of persons with disabilities,
- to advocate for and monitor the equalization of opportunities for people with disabilities as stipulated in the United Nation’s Standard Rules,
- to coordinate the formation and strengthen the capacity of the affiliated DPOs.
- Accountability and transparency
- Respect for Human rights
- Equal opportunities (equity)
- Team work
- Gender sensitivity
- Good governance
- Belief in God
ORGANIZATIONAL [PROFILE FOR ALL OPDs
- MALAWI UNION OF THE BLIND (MUB)
The EXECUTIVE DIRECTOR
P.O. BOX 5092
Situated in Chiwembe Township
Hotlines: +265 999 952 391/888 852 391/1 942 862
A barrier free society in which persons with visual impairment enjoy full and equal participation.
Advocating for the rights of persons with visual impairment and further their interstates through awareness raising and empowerment so that they participate fully in the national development process.
- To mobilize persons with visual impairments for collective action.
- To influence legislation in favor of blind and partially sighted people.
- To improve on the Social and economic of the blind and partially sighted people through lobbying foR the employment opportunities and access to income generating activities.
- To improve the management and implementation of of MUB programs through training sin identified areas.
- To promote and influence the delivery of services to blind and partially sighted people through networking and collaboration with government other NGOs.
- To raise awareness on needs, problems, limitations potential and rights of blind and partially sighted people so as to change society’s negative attitudes them.
- MUB has 45 branches across the country
- 14121 members
- 5,931 males
- 8,190 females
- Sociology and Economic Empowerment of rural blind women
- Capacity building for the membership through leadership training, organization development and income generation.
- Visual impaired youth empowerment
- Advocacy on HIV & AIDS, Sexual & Reproductive Health Rights
MUB CORE AREAS OF CONCENTRATION
- Capacity building
- Provision of devices
- Public sensitization
- Awareness raising
- Contribution in the policy development
- Capacity building of MUB branches
- Establishment of special needs directorate
- The development of the tactile ballot guide
- The general Assembly– Comprises of the delegates from all branches. They meet once in every five years and its the supreme authority to ratify and policy approval
- The Executive Board- Comprises of president, vice president, secretary general, treasure, chair of women wing, chair of youth wing and chair persons from all four regions It is involved in policy making and monitoring and answerable to the General Assembly.
- The Board of Trustees-Its legal custodian of MUB comprises five members
- Standing committees– the committees work hand in hand with the board of trustees
- The Secretariat-Led by the Executive Director with currently 13 members of staff. Answerable to the board and implements policies and decisions
2 SPINAL INJURIES ASSOCIATION OF MALAWI (SIAM)
‘To live fulfilled and independent lives after spinal cord injury’
SIAM was established in 2011 and get registered in 2020 and get affiliated to FEDOMA in 2017.
A society without barriers for persons with spinal injury and the disabled.
Promote the realization of equal rights for persons with spinal injuries and to facilitate their meaningful inclusion in all aspects of community life during the entire chain of accessing care and reintegration.
- Making positive impact on the lives of persons with spinal cord injuries
- Provide vital help and advice
- Empower persons with spinal cord injuries SCI
- Be committed to the ever changing needs of persons with Spinal cord injuries
- Work together in an environment build on respect and mutual support
- inclusive society
Spina Injuries Association of Malawi
Off Magalasi Road
Feed the Children premises
C/O Motivation Malawi Country Office
P.O. BOX 1530
Cell: +265 888 328 374 for Bylon Kondowe, Interim Chairperson
+265 884 898 898 for Scader Louis, ,nterim Secretary
3 MALAWI NATIONAL ASSOCIATION FOR THE DEAF (MANAD)
Bridging the communication gap
MANAD was established in 1992 and later joined FEDOMA in 1999
A society in which deaf people fully participate in and enjoy the highest quality of life.
Empowering, incapacitate, advocate and improve the deaf people’s own lives through promotion, recrimination and inclusion of sign language development of their full equal rights in social, political and environment in MAlawi.
To promote Malawi sign language as a means of communication
To advocate for the rights , interest and welfare of the deaf people.
To build the capacity of deaf people in claim, access, enjoy and deferred their rights.
To work in cooperation with individuals, national and international organizations, interest groupsvand others to have a business agenda on the rights, interest b and welfare of deaf people.
To promote income generating projects for the Deaf members and for the sustainably of the organization.
Disability is not inability
Situated along Ufulu Road in Njamba Township
Private Bag 14
Cell +265 995 578 8711/884 536 245
+265 995 578 711
4 Visual Hearing Impairment Membership Association (VIHEMA Deafblind Malawi)
VIHEMA DEAFBLIND MALAWI PROFILE
VIHEMA Deafblind Malawi stands for ‘Visual Hearing Impairment Membership Association’. Its main mission is to look into the welfare of Deafblind persons in all aspects of life in Malawi while seeing society that will accept people with Deafblindness so that they actively participate in the activities of national development. Established under the laws of Malawi in 2008, registered with CONGOMA, NGO Board and affiliate organization to FEDOMA .At international level, VIHEMA is a member of World Federation of Deafblind, Africa Federation of Deafblind and Deafblidn International.
Deafblindness is a distinct disability. It is a combined vision and hearing disability. It limits activities of a person and restricts full participation in society to such a degree that society is required to facilitate specific services, environmental alterations and/or technology. It has its own concepts and terminologies, methods of assessment and education and its own modes of communication
VIHEMA Deafblind Malawi strives to improve the welfare of the Deafblind persons, for instance, the organization distributed through a Pass on ‘Goat’ Project-about 22 goats to eleven Deafblind members in two districts of Mzimba and Blantyre in a pilot wave. We are still monitoring the process and the proceeds will be published in the near future. This was to affirm to the nation that not all is lost for the Deafblind people that the world can abandon them for lack of incompetence or otherwise
Another prominent show off has been the success in enabling the Deafblind persons vote in the last year 2014 Tripartite Elections. This was made possible through an intensive advocacy and lobby that VIHEMA Deafblind Malawi conducted. VIHEMA engaged the Malawi Electoral Commission-ME-and the Malawi Human Rights Commission-MARC-to make it a must that the constituted ‘common suffrage’ is adhered to, allowing the Deafblind vote by using the tactile sign communication. It was successful though the tactile ballot need improvement for Deafblind to personally access and uses it without any assistance.
Still in making sure that VIHEMA understands the ‘dialects’ and objectives of the Disability Act in its full form, the association implemented a project on inclusive Education (IE) with main focus on the Deafblind persons who have not received much attention in public due to the inadequate publicity about this unique disability. The project was implemented in Chiladzulu and phased out in August 2015 and now we are in Mzimba north with the same project for 12 months (from September 2017-August 2018)
Positively and successfully implemented pro women and girls’ project on reproductive health and family planning in Kasungu district funded by Fp2020 Rapid Response fund which was for 12 months again and with the inclusive education project in Chiladzulu district, the association achieved the establishment of a Deafblind education department (Montfort College).
- General Assembly
- Executive Board
- Board of Trustees
Elber Houese, down flow roon 7, next to Limbe Cathedral, along Zomba Road
P.O. BOX 2306, Blantyre, Malawi.
5 DISABLED WOMEN IN DEVELOPMENT (DIWODE
- DIWODE Motto– Leave no one behind
- DIWODE is a membership disability organization of women and girls with all types of disabilities in Malawi. DIWODE was established in 1996 and officially registered with Malawi government under the Trustees Incorporation Act in November 1999. The organization is represented by groups known as Zones in different districts of Malawi. DIWODE joined FEDOMA in 1999.
- 4. Vision
A barrier-free society whereby all women and girls maximize their potentials to the fullest.
DIWODE exists to promote meaningful participation and self I representation of women and girls with disabilities by advocating for their rights.
- 6. Objectives
- Economic empowerment for women and girls with disabilities using different methods including savings and loans.
- Sexual Reproductive Health (SRH) Rights including HIV prevention
- Access to education by girls with disabilities
- Human rights, gender, and gender based violence
- Organizational capacity building
7 Core Values of DIWODE
Inclusiveness – Embracing diversity
Integrity – upholding our values
Respect – regard the rights of others
Transparency and Accountability – delivery focused
Empowerment – Empowering our members
Commitment – working collaboratively
Team work – united we stand
Maximizing potentials – making the best
- 8. Contact details
Sigere Kasasi(Mrs) Executive Director
Post Office Box 30368
Tel: +(265) 888 857 674/+(265) 993 835 421
Facebook: Disabled Women In Development
- 9. Contact person
Sigere Kasasi(Mrs) Executive Director.
- 10. Physical address
Near Kingstone Motors, Chirimba, Blantyre.
6 ASSOCIATION OF PERSONS WITH PHYSICAL DISABILITIES IN MALAWI (APPDM)
Key Contact Person: Mr. Charles Khaula
Position: Executive Director
Mailing Address: P.O. Box 30924
Association of the Physically Disabled in Malawi is a Disabled Peoples’ Organisation (DPO), fully registered and accredited by the Malawi government on 20th April 2004 under the provision of the Trustees Incorporation Act, 1962. Our programs are demand driven by the needs of persons with physical disabilities in Malawi. In this regard, in all its programs APDM works to ensure that people with physical disabilities can identify their needs, express their views on issues affecting them and speak with one voice, lobby for inclusive legislation at both local and national level, evaluating services and advocating change and public awareness.
Our Vision: to be an organisation that creates an environment that fosters respect to the rights of all people with physical disabilities in Malawi
Our Mission: Our mission is to Advocate for Full Participation; ensure Self Representation in all sectors of society, and Promote Networking with other organisations.
§ To promote the enjoyment of inherent human rights by all persons with physical disabilities
- Human Rights
- Social Inclusion
Our Track Record
APDM has for the past years been an active organization in advocating and fighting for rights for persons with physical disabilities…
Among the programs we have engaged ourselves into, are;
- Structuring of APDM’s governance system
- Conducting Research on Water and Sanitation
- Awareness Raising
- Did a project on access to the build structures in Mulanje and Zomba districts
- Doing a project on access to Water Sanitation and Hygiene in Chikwawa and Salima districts
We have district committees in the following districts: Nkhotakota, Machinga, Salima, Mangochi, Balaka, Chikwawa, Mzimba, Mulanje, Neno, Zomba and Mwanza. We have a strong committee in Lilongwe which is called APDM Lilongwe chapter which has embarked on membership mobilization, and Lilongwe being very big, it has divided the district into zones so that people can easily meet and also registration of members be made easy.
Active Participation in Local Governance
- APDM recognises that through active participation in various decision making structures, human rights for persons with physical disabilities are going to be realised, and services be easily accessed. For this reason, we have APDM member representatives in Mulanje, Balaka, Nkhotakota, Neno and Mangochi district councils.
The organisation has 2,818 registered members 48% being women and 52% men and the districts that have done the highest registration as follows according to rank:
- Mulanje district 577
- Nkhotakota district 374
- Thyolo district 369
- Mangochi district 314
- Neno district 260
- Karonga district 237
- Mzimba district 114
The database also tells us that 65% of our members registered, survive through subsistence farming and they all live in the rural areas.
APDM has the following as its core values throughout its work;
· Transparency and accountability
· Mutual respect
AREAS OF OPERATION
APDM is fully registered as a national organization; it has organizational representation at regional, district and national level. It strives to reach out to its members all over Malawi.
As an organization that advocates and fights for the inherent rights of persons with physical disabilities, APDM plans to implement the following programs:
- Advocate and Lobby for Accessible structures and Facilities
- Conduct research on accessibility of Health services
- Advocate and lobby for equality in public service delivery
- Promote the education of persons with physical disabilities
- Strengthen the membership structures at all levels
7. DISABLED WIDOWS AND ORPHANS ORGANIZATION IN MALAWI (DWOOM)
DWOOM was established in 1994 and was registered on 26th August, 2003 and joined FEDOMA on 2nd November, 2006.
Provide education, training , civil education, economic empowerment and other activities that will benefit persons with disabilities and others.
Unite persons with disabilities staying together, loving one another sharing knowledge and working together in the activities that will benefit them and DWOOM is working in gender basis.
- To improve economic and social welfare of persons with disabilities, widows and orphans.
- To provide training and skills to persons with disabilities and all marginalized.
- To operate and provide income generating activates for the advancement of the association and empowerment of persons with disabilities and marginalized.
- To help fight against HIV/AIDS especially among the marginalized people.
DWOOM is situated in the premises of Mbulunji Skills Training Center
P.O. BOX 144
Executive Director: Kennedy H. Mathemba Mhango
+265 999 183 092/881 364 989/997 942 451
General Secretary +265 994 004 390
8 DISABILITY RIGHTS ORGANIZATION IN MALAWI (DROM)
The Organization was established in 2017 and joined FEDOMA i n 2017.
The enjoyment of full and equal rights in all aspects of life for all persons with disabilities in Malawi.
Protect, preserve and promote rights of persons with disabilities through relevant legal frame work advocacy of positive policies by government, civil education empowerment of persons with disabilities in all aspects of life for the benefit and empowerment of life of persons with disabilities and the society at large.
Protect, Preserve and promote the disability rights.
Sensitize the society on disability rights
The Executive Director
Disability Rights Organization DROM
P.O. BOX 90266
Cell: +265 884 058 387
The Executive Director & the contact person: Mrs. Elizabeth Machinkjiri
9 NATIONAL EPILEPSY ASSOCIATION OF MALAWI (NEAM)
Office No. 4
National Organization for Nurses and Midwives Building
+265 99 589 9001 Francina Gondwe (Chair person)
+265 997 771 534 Hermes Tebulo (Vice Chair person)
National Epilepsy Association of Malawi aims to put epilepsy on the national agenda by voicing out the concerns of people with epilepsy and making sure that their rights and opportunities are respected in all sectors of government and community structures. WE also aim to promote and coordinate development efforts and self-help projects among persons with epilepsy and their organizations.
VISION- “PUTTING EPILEPSY ON THE AGENDA”
MISSION – To promote the rights of persons with epilepsy problems in Malawi and to work for equality of rights and opportunities for persons living with epilepsy.
- To promote and coordinate development efforts and self-help projects among persons with epilepsy and their organizations.
- To facilitate the full participation of people living with epilepsy and carers of people with epilepsy in designing, formulation, implementation and evaluation of policies, programs and services for their needs and to monitor, evaluate and review such services.
- To facilitate the exchange of information in the field of epilepsy health, through research, civic education programmes and seminars.
- To affiliate and cooperate with other regional, national and international organizations that work in epilepsy care, support and advocacy.
10. Parents for Disabled Children Association of Malawi PODCAM
Creating a society that will promote the rights, the survival, protection and development of the children with various disabilities.
To represent and support the interest of children with disabilities at all levels of social, economic, political and cultural activities
To mobilize parents of children with disabilities towards the uplifting their living conditions
To lobby the government and private sector on the aspirations of persons with disabilities
To create awareness on the plight of children with disabilities through provision information on the development protection and survival of children with disabilities
To Facilitate provision of conducive learning environment for children with disabilities
“Building a society good for all”
To ensure that parents are championing the full enjoyment by children with disabilities of all human rights and fundamental freedoms on an equal basis with other children.
PODCAM is open to all parents or guardians of children with disabilities and institutions or individuals working in the areas of promotion and protection of the rights of children and youth with disabilities to enhance their development and participation. Currently the children with disabilities registered with PODCAM 16,243
PODCAM has a permanent Secretariat comp[rises of the Executive Director, Program Officer, Fund raiser and Public Relations Office, Project Officer and Administrative Secretary and 5 members of support staff.
The board meet at least 4 times a year.
There is a general assembly held every three years.
PODCAM was established in 1998 and it operating in 23 districts in Malawi. and was registered with Malawi Government on 10th July, 2001 and its registration number is TR/INC1306 and its a member of FEDOMA
Postal address and contact details
P.O.BOX 80103 Chichiri Blantyre 8 Malawi Central Africa
Tel: +265 (0) 996 687 651/999 897 955/884 488505
Contact Person: Lyness Manduwa, Acting Executive Director +265 (0) 888 305 189